Dedicated to finding the cure for lupus and improving the lives of those affected
by funding research and providing information, public education and support groups.
Why do we exist?
We exist to assist lupus patients and their families and friends learn about lupus.
To implement programs aimed toward public awareness and education and to seek funding
for research into the causes and cure of the disease of Lupus Erythematosus.
We are the only lupus organization in the San Diego – Imperial County area with
a full-time staff person and volunteers in the office to answer questions and direct
people to getting the help they need.
When a person has lupus it is very important to know that they are not the only
one with this disease. By speaking first to the staff person and then a person
who is also living with lupus it helps to calm their fears and find out that they
can live with lupus.
Because 1-185 people have lupus, most likely someone you know has lupus.
What have you accomplished?
Because Lupus is such a life altering disease, it is very important to find a doctor
that knows about lupus and that the patient can relate to. We have lists of
doctors that we keep updated and can share with people calling in for information.
We also ask for feedback from the patients themselves.
Also, it is important to know that you are not alone in the struggle.
Speaking with someone who is living with Lupus has a very calming effect on the
newly diagnosed. We have peer patient counseling for anyone that calls or
e-mails the office.
A quote from one of our members. “The average lupus patient has Lupus for
5 years before they are diagnosed. When I finally received the diagnoses of
Lupus for my daughter, then I knew she would get the help to get well. At
the same time we received the diagnosis, I was told about the Lupus Foundation in
San Diego. When I made that phone call and spoke to a living lupus
patient it just gave me such hope. It is just the feeling of support that
through the good times and bad times these people will be there for us. You
find out over time that just about everything you experience, the fears, the depression,
the ups and downs, these people have also experienced. Knowing you are not
the only one suffering with this disease helps in so many ways.”
|